Patient, caregiver and clinician use of comparative effectiveness research findings in care decisions: results from a national study
Abstract
Aim: To assess awareness, use and attitudes concerning comparative effectiveness research (CER) findings. Materials & methods: Online surveys of patients and caregivers managing rare (n = 560 patients, n = 609 caregivers) or chronic conditions (n = 762 patients, n = 776 caregivers), and practicing clinicians (n = 638). Results: Less than half of patients and caregivers reported exposure to any type of CER findings in the past 12 months. Of those, over half identify healthcare professionals as the information source, yet only 10% of clinicians indicated they were ‘very familiar’ with CER. Clinicians were concerned about the time required to find relevant evidence and the appropriateness of comparisons in available health research. Conclusion: Clinicians, patients and caregivers indicate unmet need for incorporating CER research findings into clinical decision-making.
Formats available
You can view the full content in the following formats:
Supplementary Material
File (suppl_material.pdf)
- Download
- 2.15 MB
References
Papers of special note have been highlighted as: •• of considerable interest
1.
Sox H, Greenfield S. Comparative effectiveness research: a report from the Institutes of Medicine. Ann. Intern. Med. 151(3), 203–205 (2009).
2.
Darling H. Employee attitudes toward health information and comparative effectiveness research (2011). www.changehealthcare.com/downloads/industry/02.01.2011%20NBGH%20EE%20Attitudes.pdf.
3.
Williams SS, Frost SL. Differences among consumer segments with regard to perceptions of comparative effectiveness research. J. Comp. Eff. Res. 3(6), 617–622 (2014).
4.
US Senate and House of Representatives. The Patient Protection and Affordable Care Act, Public Law. 111–148 111th Congres (2010). https://www.gpo.gov/fdsys/pkg/BILLS-111hr3590enr/pdf/BILLS-111hr3590enr.pdf.
5.
US Senate and House of Representatives. American Recovery and Reinvestment Act (ARRA) of 2009, Public Law. 111–115 111th Congress (2009). https://www.gpo.gov/fdsys/pkg/BILLS-111hr1enr/pdf/BILLS-111hr1enr.pdf.
6.
Esposito D, Yong PL, Rich E, Geonnotti K, Kimmey LD. The ARRA investment in CER: a description of the midstream evaluation and how the funds were allocated and CER priorities addressed. J. Comp. Eff. Res. 3(6), 581–589 (2014).
7.
Forsythe LP, Frank L, Walker KO et al. Patient and clinician views on comparative effectiveness research and engagement in research. J. Comp. Eff. Res. 4(1), 11–25 (2015).
•• Results from prior research that was used in the development and analysis of the current study.
8.
Cornwell D, Hu M, Esposito D. Public perceptions of comparative effectiveness research and use of evidence in healthcare decision-making. J. Comp. Eff. Res. 3(6), 623–634 (2014).
•• Prior research used to inform the current study.
9.
Keyhani S, Woodward M, Federman AD. Physician views on the use of comparative effectiveness research: a national survey. Ann. Intern. Med. 153(8), 551–552 (2010).
•• Results from prior research that was used in the development and analysis of the current study.
10.
Forsythe LP, Frank LB, Workman TA et al. Health researcher views on comparative effectiveness research and research engagement. J. Comp. Eff. Res. (2016) (Epub ahead of print).
11.
Forsythe LP, Frank LB, Workman TA, Hilliard T, Harwell D, Fayish L. Patient, caregiver, and clinician views on engagement in comparative effectiveness research. J. Comp. Eff. Res. (2016) (Epub ahead of print).
12.
Lowry SJ, Loggers ET, Bowles E, Wagner EH. Evidence gaps in advanced cancer care: community-based clinicians’ perspectives and priorities for CER. Am. J. Manag. Care 18(5 Spec No. 2), SP77–83 (2012).
13.
Reynolds C, Martin D, Dubois RW, Westrich K. Comparative effectiveness research: do employers care? What will they do? (2011). www.npcnow.org/publication/comparative-effectiveness-research-do-employers-care-what-will-they-do.
14.
Schneider EC, Epstein AM. Use of public performance reports: a survey of patients undergoing cardiac surgery. J. Am. Med. Assoc. 279(20), 1638–1642 (1998).
15.
Weidmer B, Hurtado M, Weech-Maldonado R, Ngo-Metzger Q, Bogen K. Guidelines for translating CAHPS surveys. Prepared by the CAHPS II Cultural Comparability Team (2006). https://www.ahrq.gov/cahps/surveys-guidance/helpful-resources/resources/cahpsGuidelines_Translation.html.
16.
Dillman Don A, Smyth JD, Christian LM. Internet, mail and mixed-mode surveys. John Wiley & Sons, Hoboken, NJ, USA (2009).
17.
Ziegenfuss JY, Burmeister KR, Harris A, Holubar SD, Beebe TJ. Telephone follow-up to a mail survey: when to offer an interview compared to a reminder call. BMC Med. Res. Methodol. 12(1), 32 (2012).
18.
Braddock C, Fihn S, Levinson W, Jonsen A, Pearlman R. How doctors and patients discuss routine clinical decisions: informed decision making in the outpatient setting. J. Gen. Intern. Med. 12(6), 339–345 (1997).
19.
Statacorp. Stata Statistical Software: Release 13. StataCorp LP, College Station, TX, USA (2013).
20.
Rich EC. From concept to policy: 10 years after the call for a US center for comparative effectiveness information. J. Comp. Eff. Res. 6(1), 9–11 (2016).
21.
Brom L, Hopmans W, Pasman HR, Timmermans DR, Widdershoven GA, Onwuteaka-Philipsen BD. Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature. BMC Med. Inform. Decis. Mak. 14, 25 (2014).
22.
Bouniols N, Leclère B, Moret L. Evaluating the quality of shared decision making during the patient-carer encounter: a systematic review of tools. BMC Res. Notes 9(1), 382 (2016).
23.
Eijk MVD, Faber M, Aarts J, Kremer J, Munneke M, Bloem B. Using online communities to deliver patient-centered care to people with chronic conditions. J. Med. Internet Res. 15(6), e115 (2013).
24.
Agency for Healthcare Research and Quality. AHRQ Projects funded by the Patient-Centered Outcomes Research Trust Fund (2016). www.ahrq.gov/funding/training-grants/pcor/pcortf-di.html.
25.
Ioannidis JP. Why most clinical research is not useful. PLoS Med. 13(6), e1002049 (2016).
Information & Authors
Information
Published In
Copyright
© PCORI.
History
Published online: 8 February 2017
Keywords:
Topics
Authors
Metrics & Citations
Metrics
Article Usage
Article usage data only available from February 2023. Historical article usage data, showing the number of article downloads, is available upon request.
Citations
How to Cite
Patient, caregiver and clinician use of comparative effectiveness research findings in care decisions: results from a national study. (2017) Journal of Comparative Effectiveness Research. DOI: 10.2217/cer-2016-0061
Export citation
Select the citation format you wish to export for this article or chapter.
