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Systematic Review
17 November 2017

Patient and provider perspectives on shared decision making: a systematic review of the peer-reviewed literature

Abstract

For comparative effectiveness research to be effective, patients and providers must collaborate in shared decision making (SDM) to make evidence-based clinical decisions that align with patient preferences. We conducted a systematic review to examine patient and provider attitudes toward and engagement in SDM in the USA. Searches in PubMed and PsycINFO identified 1585 articles published between July 2006 and December 2016, of which 290 were screened in for coding and analysis. We found that patients and providers have generally positive attitudes toward SDM, but actual engagement in SDM behavior is lagging. Translation of positive attitudes into behavior could be achieved through policies that support key SDM processes of sharing evidence, considering patient preferences and discussing the relative advantages of different clinical options.

Supplementary Material

File (suppl_appendix.docx)

References

Papers of special note have been highlighted as: • of interest; •• of considerable interest
1.
Institute of Medicine. Initial National Priorities For Comparative Effectiveness Research. National Academies Press, DC, USA (2009).
• Mandated by the American Recovery and Reinvestment Act of 2009, this report obtained input from diverse stakeholders (including patients and providers) regarding comparative effectiveness research priorities.
2.
Federal Coordinating Council for Comparative Effectiveness Research. Report to the President and the Congress. US Department of Health and Human Services, DC, USA (2009). https://osp.od.nih.gov/wp-content/uploads/FCCCER-Report-to-the-President-and-Congress-2009.pdf.
• Mandated by the American Recovery and Reinvestment Act of 2009, this report obtained input from diverse stakeholders (including patients and providers) regarding comparative effectiveness research recommendations.
3.
Rich E. Past as prologue: how comparative effectiveness research became patient-centered outcomes research. J. Comp. Eff. Res. 1(6), 475–477 (2012).
• Provides background on the definition of ‘comparative effectiveness research’ and the evolution of the term ‘patient-centered outcomes research’ to highlight the importance of ensuring that clinical decisions are patient centered, following establishment of the Patient-Centered Outcomes Institute by the Affordable Care Act of 2010.
4.
Esposito D, Chen A, Gerteis M, Lake T. Using comparative effectiveness research: information alone won't lead to successful health care reform. Mathematica Policy Research Center on Health Care Effectiveness Issue Brief no. 2 (2010).
• Policy brief highlighting opportunities to ensure that comparative effectiveness research is used at the point of care by addressing challenges in several critical areas, including patient engagement.
5.
Barry M, Edgman-Levitan S. Shared decision making – the pinnacle of patient-centered care. N. Engl. J. Med. 366(9), 780–781 (2012).
•• Highlights the importance of shared decision making (SDM) for ensuring patient-centered healthcare and provides recommendations for promotion of SDM by patients and providers.
6.
Lee EO, Emanuel E. Shared decision making to improve care and reduce costs. N. Engl. J. Med. 368(1), 6–8 (2013).
•• Highlights the importance of SDM for improving healthcare quality and reducing costs and provides recommendations for promotion of SDM by federal health programs and agencies.
7.
Gerteis M, Borck R. Shared decision-making in practice: lessons from implementation efforts. Report Submitted to the Medicare Payment Advisory Commission. Mathematica Policy Research, MA, USA (2009).
•• Summarizes lessons learned regarding facilitators and challenges of implementation of SDM at the point of care.
8.
Pollard S, Bansback N, Bryan S. Physician attitudes toward shared decision making: a systematic review. Patient Educ. Couns. 98, 1046–1057 (2015).
•• Systematic review of provider attitudes toward SDM, focusing on factors associated with variations in attitudes, including provider specialty, specific clinical condition and treatment decision, and patient ability and willingness to participate in SDM.
9.
Moher D, Liberati A, Tetzlaff J, Altman DG, The PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 6(7), e1000097 (2009).
10.
Fowler FJ, Gerstein BS, Barry MJ. How patient centered are medical decisions?: results of a national survey. JAMA Intern. Med. 173(13), 1215–1221 (2013).
•• Study of decision-making processes across multiple common medical conditions, finding that generally pros discussed more frequently than cons, with variation across tests, medications and procedures.
11.
Hoffman RM, Elmore JG, Fairfield KM, Gerstein BS, Levin CA, Pignone MP. Lack of shared decision making in cancer screening discussions: results from a national survey. Am. J. Prev. Med. 47(3), 251–259 (2014).
•• Study finding that generally screening pros discussed more frequently than cons, providers frequently failed to note that screening was optional, and patients feeling well informed associated with confidence in screening decision.
12.
Green AR, Jenkins A, Masoudi FA et al. Decision-making experiences of patients with implantable cardioverter defibrillators. Pacing Clin. Electrophysiol. 39(10), 1061–1069 (2016).
13.
Corriere MA, Avise JA, Peterson LA et al. Exploring patient involvement in decision making for vascular procedures. J. Vasc. Surg. 62(4), 1032–1039 (2015).
14.
Shelton RC, Clarke Hillyer G, Hershman DL et al. Interpersonal influences and attitudes about adjuvant therapy treatment decisions among non-metastatic breast cancer patients: an examination of differences by age and race/ethnicity in the BQUAL Study. Breast Cancer Res. Treat. 137(3), 817–828 (2013).
15.
Rodriguez V, Andrade AD, Garcia-Retamero R et al. Health literacy, numeracy, and graphical literacy among veterans in primary care and their effect on shared decision making and trust in physicians. J. Health Commun. 18(Suppl. 1), 273–289 (2013).
16.
Barr PJ, Forcino RC, Mishra M, Blitzer R, Elwyn G. Competing priorities in treatment decision-making: a US national survey of individuals with depression and clinicians who treat depression. BMJ Open 6, e009585 (2016).
• Study showing relatively low levels of SDM among patients with depression, with somewhat higher levels for psychiatrist providers.
17.
Fairfield KM, Gerstein BS, Levin CA, Stringfellow V, Wierman HR, McNaughton-Collins M. Decisions about medication use and cancer screening across age groups in the United States. Patient Educ. Couns. 98(3), 338–343 (2015).
• Study finding generally poor decision processes and low levels of knowledge among patients making medication or screening decisions.
18.
Barry MJ, Wexler RM, Brackett CD et al. Responses to a decision aid on prostate cancer screening in primary care practices. Am. J. Prev. Med. 49(4), 520–525 (2015).
19.
Hoffman RM, Elmore JG, Pignone MP, Gerstein BS, Levin CA, Fairfield KM. Knowledge and values for cancer screening decisions: results from a national survey. Patient Educ. Couns. 99(4), 624–630 (2016).
• Study finding relatively low levels of knowledge regarding cancer screening and overestimation of lifetime risk of cancer incidence and mortality.
20.
Marrie RA, Salter AR, Tyry T, Fox RJ, Cutter GR. Preferred sources of health information in persons with multiple sclerosis: degree of trust and information sought. J. Med. Internet Res. 15(4), 210–221 (2013).
21.
Volk RJ, Linder SK, Kallen MA et al. Primary care physicians use of an informed decision-making process for prostate cancer screening. Ann. Fam. Med. 11(1), 67–74 (2013).
•• Study showing that primary care provider beliefs about screening are associated with use of SDM with patients.
22.
Portnoy DB, Han PKJ, Ferrer RA, Klein WMP, Clauser SB. Physicians’ attitudes about communicating and managing scientific uncertainty differ by perceived ambiguity aversion of their patients. Health Expect. 16(4), 362–372 (2013).
23.
Bozic KJ, Belkora J, Chan V et al. Shared decision making in patients with osteoarthritis of the hip and knee: results of a randomized controlled trial. J. Bone Joint Surg. Am. 95(18), 1633–1639 (2013).
• Randomized controlled trial showed that SDM intervention increased likelihood of patient reaching an informed decision during first visit.
24.
Fowler FJ, Gallagher PM, Drake KM, Sepucha KR. Decision dissonance: evaluating an approach to measuring the quality of surgical decision making. Jt Comm. J. Qual. Patient Saf. 39(3), 136–144 (2013).