Identifying the unmet needs of individuals with Type 2 diabetes: an international web-based survey
Publication: Journal of Comparative Effectiveness Research
Abstract
Aim: To identify and understand the main unmet needs of individuals with Type 2 diabetes (T2D). Materials & methods: An online survey was conducted in Brazil, China and Russia of individuals with recently diagnosed T2D. Results: The survey, involving 300 individuals with T2D, identified a need for more information regarding food/diet and for increased awareness of T2D symptoms. While most participants (94%) had experienced symptoms prior to their diagnosis, only 55% of symptomatic individuals sought medical attention. Conclusion: Novel strategies to increase awareness of diabetes should be developed and tested, and may enable earlier diagnosis and improve patients’ quality of life.
Lay abstract
Type 2 diabetes (T2D) negatively impacts an individual’s health-related quality of life and represents a significant burden of disease worldwide. Although previous studies have examined the unmet needs of patients with diabetes, no recent studies have evaluated the needs of individuals with T2D in Brazil, China or Russia. This study used an online questionnaire to identify and understand the main unmet needs of individuals who had been recently diagnosed with T2D from these countries. Several potential needs were identified, including the need for more information and support about food and diet, a new noninvasive solution for blood glucose monitoring and increased awareness of T2D symptoms. Our study also identified possible innovative solution to address these needs.
Formats available
You can view the full content in the following formats:
Supplementary Material
File (suppl_file.docx)
- Download
- 17.12 KB
References
Papers of special note have been highlighted as: • of interest; •• of considerable interest
1.
International Diabetes Federation. IDF Diabetes Atlas (9th Edition). IDF, Brussels, Belgium (2019).
2.
GBD 2016 Brazil Collaborators. Burden of disease in Brazil, 1990–2016: a systematic subnational analysis for the Global Burden of Disease Study 2016. Lancet 392(10149), 760–775 (2018).
3.
Telo GH, Cureau FV, De Souza MS, Andrade TS, Copes F, Schaan BD. Prevalence of diabetes in Brazil over time: a systematic review with meta-analysis. Diabetol. Metab. Syndr. 8(1), 65 (2016).
4.
Li Y, Teng D, Shi X et al. Prevalence of diabetes recorded in mainland China using 2018 diagnostic criteria from the American Diabetes Association: national cross sectional study. BMJ 369, m997 (2020).
5.
Dedov I, Shestakova M, Benedetti MM, Simon D, Pakhomov I, Galstyan G. Prevalence of Type 2 diabetes mellitus (T2DM) in the adult Russian population (NATION study). Diabetes Res. Clin. Pract. 115, 90–95 (2016).
6.
Acharya S, Barber SL, Lopez-Acuna D et al. BRICS and global health. Bull. World Health Organ. 92(6), 386–386A (2014).
7.
Romaniuk P, Poznanska A, Brukalo K, Holecki T. Health system outcomes in BRICS countries and their association with the economic context. Front. Public Health 8, 80 (2020).
8.
Seuring T, Archangelidi O, Suhrcke M. The economic costs of Type 2 diabetes: a global systematic review. Pharmacoeconomics 33(8), 811–831 (2015).
• Systematic review of the global evidence on the costs of Type 2 diabetes (T2D), revealing the large economic cost of the disease in low-and middle-income countries (LMICs).
9.
Schram MT, Baan CA, Pouwer F. Depression and quality of life in patients with diabetes: a systematic review from the European depression in diabetes (EDID) research consortium. Curr. Diabetes Rev. 5(2), 112–119 (2009).
10.
Jing X, Chen J, Dong Y et al. Related factors of quality of life of Type 2 diabetes patients: a systematic review and meta-analysis. Health Qual. Life Outcomes 16(1), 189 (2018).
• Recent systematic review and meta-analysis of data from over 57,000 patients that identified the disease-related factors having the greatest impact on quality of life in patients with T2D.
11.
Liu NF, Brown AS, Folias AE et al. Stigma in people with Type 1 or Type 2 diabetes. Clin. Diabetes 35(1), 27–34 (2017).
12.
Mccoy MA, Theeke LA. A systematic review of the relationships among psychosocial factors and coping in adults with Type 2 diabetes mellitus. Int. J. Nurs. Sci. 6(4), 468–477 (2019).
13.
Kalra S, Jena BN, Yeravdekar R. Emotional and psychological needs of people with diabetes. Indian J. Endocrinol. Metab. 22(5), 696–704 (2018).
14.
Funnell MM, Bootle S, Stuckey HL. The Diabetes Attitudes, Wishes and Needs second study. Clin. Diabetes 33(1), 32–36 (2015).
•• Follow-up to the Diabetes Attitudes, Wishes and Needs study, which aimed to determine whether progress had been made in diabetes self-care since the publication of the original study.
15.
Peyrot M, Burns KK, Davies M et al. Diabetes Attitudes Wishes and Needs 2 (DAWN2): a multinational, multi-stakeholder study of psychosocial issues in diabetes and person-centred diabetes care. Diabetes Res. Clin. Pract. 99(2), 174–184 (2013).
16.
Tarkun I, Dumanli Ozgoksu S. Attitudes, wishes, and needs of diabetes patients and their relatives: Turkish data from the DAWN2 study. Turk. J. Med. Sci. 47(2), 447–454 (2017).
17.
Peyrot M, Rubin RR, Lauritzen T, Snoek FJ, Matthews DR, Skovlund SE. Psychosocial problems and barriers to improved diabetes management: results of the Cross-National Diabetes Attitudes, Wishes and Needs (DAWN) Study. Diabet. Med. 22(10), 1379–1385 (2005).
•• Large, international, interview-based study of patients with diabetes (Type 1 or 2) and healthcare providers involved in their care, which aims to identify patient psychosocial problems/barriers to effective self-care and providers’ ability to address these issues.
18.
Cleal B, Willaing I, Stuckey H, Peyrot M. Work matters: diabetes and worklife in the second Diabetes Attitudes, Wishes and Needs (DAWN2) study. Diabetes Res. Clin. Pract. 150, 90–98 (2019).
• Recent sub-analysis of data from the Diabetes Attitudes, Wishes and Needs 2 study, which assessed the impact of diabetes on work-life in adults.
19.
Mosnier-Pudar H, Hochberg G, Eschwege E et al. How do patients with Type 2 diabetes perceive their disease? Insights from the French DIABASIS survey. Diabetes Metab. 35(3), 220–227 (2009).
• Large, questionnaire-based study assessing disease knowledge among French patients with T2D.
20.
International Chamber of Commerce. ICC/ESOMAR international code on market, opinion and social research and data analytics (2016). www.esomar.org/uploads/pdf/professional-standards/ICCESOMAR_Code_English_.pdf
21.
European Pharmaceutical Market Research Association. EphMRA code of conduct 2019 (2019). www.ephmra.org/media/2811/ephmra-2019-code-of-conduct-doc-f.pdf
22.
International Society for Pharmacoepidemiology. Guidelines for good pharmacoepidemiology practices (GPP) (2015). www.pharmacoepi.org/resources/policies/guidelines-08027/
23.
Benhalima K, Mathieu C. The role of blood glucose monitoring in non-insulin treated Type 2 diabetes: what is the evidence? Prim. Care Diabetes 6(3), 179–185 (2012).
24.
Xu Y, Tan DHY, Lee JY. Evaluating the impact of self-monitoring of blood glucose frequencies on glucose control in patients with Type 2 diabetes who do not use insulin: a systematic review and meta-analysis. Int. J. Clin. Pract. 73(7), e13357 (2019).
25.
Bolla AS, Priefer R. Blood glucose monitoring- an overview of current and future non-invasive devices. Diabetes Metab. Syndr. 14(5), 739–751 (2020).
Information & Authors
Information
Published In
Pages: 613 - 624
PubMed: 33769070
Copyright
© 2021 Emilie Court. This work is licensed under the Attribution-NonCommercial-NoDerivatives 4.0 Unported License
History
Received: 8 December 2020
Accepted: 12 February 2021
Published online: 26 March 2021
Keywords:
Topics
Authors
Funding Information
Metrics & Citations
Metrics
Article Usage
Article usage data only available from February 2023. Historical article usage data, showing the number of article downloads, is available upon request.
Citations
How to Cite
Identifying the unmet needs of individuals with Type 2 diabetes: an international web-based survey. (2021) Journal of Comparative Effectiveness Research. DOI: 10.2217/cer-2020-0271
Export citation
Select the citation format you wish to export for this article or chapter.
Citing Literature
- Woorim Kim, Kyujin Chang, Soon Young Lee, Yeong Jun Ju, Association between diabetic patients’ satisfaction with local medical services and experiences of unmet healthcare needs, BMC Health Services Research, 10.1186/s12913-026-14276-w, (2026).
- Michelle D.S. Boakye, Rockson Ansong, Eyitayo O. Owolabi, Shammah O. Omololu, Hanan Abdelrahman, Christina R. Whitehouse, Understanding Immediate Concerns at Type 2 Diabetes Diagnosis: A Qualitative Comparison of Perspectives From Newly Diagnosed Adults and Clinicians, Clinical Diabetes, 10.2337/cd25-0049, 43, 5, (746-756), (2025).
- Elisabetta Maida, Paola Caruso, Simona Bonavita, Gianmarco Abbadessa, Giuseppina Miele, Miriam Longo, Lorenzo Scappaticcio, Eleonora Ruocco, Francesca Trojsi, Katherine Esposito, Luigi Lavorgna, Maria Ida Maiorino, Digital Health in Diabetes Care: A Narrative Review from Monitoring to the Management of Systemic and Neurologic Complications, Journal of Clinical Medicine, 10.3390/jcm14124240, 14, 12, (4240), (2025).
- Mengistie Yirsaw Gobezie, Nuhamin Alemayehu Tesfaye, Tewodros Solomon, Mulat Belete Demessie, Teklehaimanot Fentie Wendie, Yaschilal Muche Belayneh, Assefa Mulu Baye, Minimize Hassen, The unmet drug-related needs of patients with diabetes in Ethiopia: a systematic review and meta-analysis, Frontiers in Endocrinology, 10.3389/fendo.2024.1399944, 15, (2024).
- Miroslava Nedyalkova, Julia Romanova, Ludmila Naneva, Vasil Simeonov, Developing a questionnaire for diabetes mellitus type 2 risk effects and precondition factors – multivariate statistical paths, Physical Sciences Reviews, 10.1515/psr-2021-0158, 8, 10, (3629-3641), (2022).
- Julio Rosenstock, Stefano Del Prato, Basal weekly insulins: the way of the future!, Metabolism, 10.1016/j.metabol.2021.154924, 126, (154924), (2022).
