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Plain Language Summary of Publication
28 February 2023

A plain language summary of what freedom from disease means to people with psoriasis according to doctors, nurses, and people with psoriasis

Abstract

What is this summary about?

This summary presents findings from recent research involving people with psoriasis, based on an article originally published in the Journal of the European Academy of Dermatology and Venereology. Psoriasis is a condition that primarily affects the skin. However, it can also influence people's mental health, social activities, work, and relationships too. Current assessment tools used by doctors and nurses do not cover the complete experience of people with psoriasis, which often include other medical conditions and can leave these individuals feeling that treatment has not been successful. Researchers conducted a study in which people with psoriasis, doctors, and nurses were asked in virtual meetings and via questionnaires what freedom from disease in psoriasis means to them.

What were the results?

In addition to skin symptoms, the areas of mental health, well-being, treatment, and relationships with healthcare teams were found to be important aspects to be addressed.

What do the results of the study mean?

Focusing on all five aspects of freedom from disease will help people with psoriasis manage their psoriasis with confidence.
To read the full Plain Language Summary of this article, click here to view the PDF.
Link to original article here

Acknowledgments

The authors thank the people with psoriasis, doctors, and nurses who took part in the study within the two voting groups.

Financial & competing interests disclosure

Full author disclosure information can be found in the original article.
Lumanity assisted in drafting the plain language summary under the direction of the authors and provided editorial support throughout its development.
Medical writing and editorial support were provided by Pippa Perrett, PhD, and funded by Janssen.

Open access

This work is licensed under the Attribution-NonCommercial-NoDerivatives 4.0 Unported License. To view a copy of this license, visit http://creativecommons.org/licenses/by-nc-nd/4.0/

Information & Authors

Information

Published In

History

Received: 8 December 2022
Accepted: 10 February 2023
Published online: 28 February 2023

Keywords: 

  1. disease management
  2. psoriasis
  3. quality of life
  4. treatment

Authors

Affiliations

Ilse van Ee
Psoriasispatiënten Nederland (PN), Nijkerk, Netherlands
Elfie Deprez
Ghent University Hospital, Ghent, Belgium
Alexander Egeberg
Department of Dermatology, Copenhagen University Hospital – Bispebjerg & Frederiksberg, Copenhagen, Denmark
Department of Clinical Medicine, University of Copenhagen, Copenhagen, Denmark
Curdin Conrad
Lausanne University Hospital CHUV, Lausanne, Switzerland
Valeria Corazza
Fondazione Natalino Corazza Onlus Psoriasis & Co., Bologna, Italy
Ludovica Donati
Fondazione Natalino Corazza Onlus Psoriasis & Co., Bologna, Italy
Jo Lambert
Ghent University Hospital, Ghent, Belgium
Rozalina Lăpădatu
Associaţia Pacienţilor cu Afecţiuni Autoimune (APAA), Bucharest, Romania
Anette Meyer
Deutscher Psoriasis Bund e.V. (DPB), Hamburg, Germany
Carle Paul
Paul Sabatier University, Toulouse, France
Centre Hospitalier Universitaire, Toulouse, France
Rebecca Penzer-Hick
University of Hertfordshire, Hatfield, UK
Karen Stephen
Ninewells Hospital, Dundee, Scotland, UK
Jim van der Zon
Psoriasispatiënten Nederland (PN), Nijkerk, Netherlands
Anthony Bewley
Barts Health NHS Trust & Queen Mary University, London, UK

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How to Cite

A plain language summary of what freedom from disease means to people with psoriasis according to doctors, nurses, and people with psoriasis. (2023) Journal of Comparative Effectiveness Research. DOI: 10.57264/cer-2022-0206

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